January visit to Mount Sinai

Friday's visit was a very long day. We left at 6 a.m. and got home at 9:45 Friday night. The visit was encouraging because they are ready to list Dylan for transplant. They want him listed so that the ideal size organs for Dylan can be found. This may mean passing organs up that are not perfect for him. They only reason he has not yet been listed is NY's cardiologist had to see him and make sure his heart is strong enough and the pulmonary stenosis that Dylan does have will not cause problems during the 16 hour double transplant surgery. Dylan's cardiologist was unable to "clear Dylan for surgery" and has ordered the cardiac catheterization and a cardiac MRI. Dylan will also be getting a Broviak (?) line to begin IV feeds. The cardiologist wanted all these tests to be done on Feb. 3rd or 6th, but again the twins are battling bad colds and I am trying to set things up for Friday, February 13th. We will likely be in NY for this round of testing from Thursday to Saturday or Sunday.