Jocelyn Maminta from News Channel 8 WTNH just contacted me to let me know that her piece on Alagille Syndrome and Dylan are going to air tomorrow between 5:30 and 6 p.m. Dylan's GI doctor, Dr. Karan Emerick, an expert regarding Alagille Syndrome, was interviewed as well and the piece should be very informative.
posted by Dylan @ 4:25 PM
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Dylan was born with a genetic condition known as Alagille Syndrome. Alagille Syndrome affects those who have it in different ways, but it is mainly a disorder of the liver, kidney, heart and eyes. Dylan's biggest issues as a result of the syndrome are his liver and kidney. His liver and kidney issues make it difficult for him to absorb nutrients and grow, and Dylan suffers from intense itching as a result of his liver problems.
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