One step closer

Friday's visit to Mount Sinai was a long one, but we are one step closer to getting Dylan listed for transplant. Although Dylan went through a lot of testing for transplant in Boston, we now know that each center wants to have their own physicians conduct the tests, rather than just accept results from other physicians. Dylan had some chest x-rays done and a lot of bloodwork. We will be going back in two weeks to have NY's cardiologist examine him. The good news is that this exam will hopefully be sufficient and he won't have to undergo the cardiac catheterization. Dylan is going to have a PIC line put in (this will be done in CT) so that we can begin feeding him with an IV. With the IV we will be able to give him nutrition and bypass his digestive system and hopefully add some weight to him. Doctors assured us that after the cardiology appointment, he will then be ready to be listed. He should be on the list by February 20th, and then we wait.