Monday, February 16, 2009

Cardiac clearance!

Dylan underwent the cardiac cath, cardiac MRI and placement of the Broviac line on Friday, February 13th. He did very well and was quite the trooper. He was under anesthesia for over 6 hours and had a breathing tube while sedated, so he is very hoarse. He is still at Mount Sinai and we are hoping he'll be able to come home tomorrow.

The result of the testing is that Dylan's heart is strong enough to undergo the simultaneous transplant and he should officially be listed this coming week!!!

The doctors have begun "fine tuning" the fluids that Dylan is being given through the Broviac. They have figured out that he has spent much of the past months being severely dehydrated, which has also hindered his growth. He has been getting enough protein through his formula, so they are now giving him sugar water, fats and carbohydrates through the Broviac. At admission on Friday he was 11.2 lbs. and today's weigh in was 12.2 lbs.! Yesterday when I left NY, he had rosy cheeks and was in great spirits - throwing Cheerios around and watching Barney. Grandma is there with him now and I will leave CT early tomorrow with the hopes of returning later in the day with The Big D!

1 Comments:

At Saturday, February 21, 2009 , Blogger Unknown said...

hello, I found your site while researching this syndrome. I started babysitting a little girl today that has this syndrome. She is 18 months old and is 15 lbs (I think). I do not know if she is listed yet on the transplant list as she is not big enough or heavy enough for the surgery per her doctor as I understand it. She is fed via a tube in her tummy...don't know the name. She has feedings of specialized formula...2 hours on...1 hour off the pump. She is a sweet, loving outgoing little baby. Very tiny and petite but lives life with gusto. I am going to follow your blog and hopefully can blog some about her on my blog as her babysitter. Praying for you guys.

 

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