It is with great sadness that we write today. This morning Dylan passed away in our arms at CCMC. While our hearts are broken, we are happy that our little man is now at peace and is no longer suffering. Arrangements are going to be at Funk Funeral Home in Bristol Monday evening and Tuesday morning.
posted by Dylan @ 2:08 PM
8 Comments
Dylan was born with a genetic condition known as Alagille Syndrome. Alagille Syndrome affects those who have it in different ways, but it is mainly a disorder of the liver, kidney, heart and eyes. Dylan's biggest issues as a result of the syndrome are his liver and kidney. His liver and kidney issues make it difficult for him to absorb nutrients and grow, and Dylan suffers from intense itching as a result of his liver problems.
8 Comments:
My family and I offer our deepest heartfelt sympathy to you. If there is anything we can do for you, please let me know.
Kimberly Updegraff
MoM of Bristol member
Vanessa, Dave and the whole annuto Family:
No words can express our sadness.
Your Little Pickle is in heaven and is now our little angel...
Thank you Dylan for the great moments and the lessons you gave us all...I am so sorry life was so short...
with all our love and compassion,
Jimena, John, Gianluca & Mateo
Dave and Vanessa
Dylan was granted very special parents for his short visit with us. Dylan at least got to know what TRUE LOVE AND DEDICATION is.
He has left a mark on all our hearts and I know God is holding him tightly now.
We're so sorry for your loss. Dylan was lucky to have you both as parents to watch over him. Now it's his turn to watch over you.
with love and sympathy
becky, brendan, breckin and hayden
Dear Vanessa, Dave, Evan and Gracie,
We are so sorry for your loss.
Dylan had touched all our hearts in a very special way.
With sincere sympathy,
Tracey, Dan, Samantha&Kevin Gabree
Twins Club
Vanessa, David, and family, Our hearts are aching for you. Nothing can hurt more than this.
You gave Dylan the best possible life he could have! I hope that is some comfort to you.
Love,
Diane and Jim (your cousin)
May God comfort you and hold you close at this time....I just found your blog today looking for info on this syndrome because of a little girl I babysit.....may God comfort you...I dont have words to express what I wish I could say.
i'm a paediatrician studying for my membership exams. i came across this website when studying alagille's syndrome.
may you find peace in God's unfathomable love and grace.
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