Dylan and Grandma Thursday, 6/4/09
posted by Dylan @ 6:15 PM
1 Comments
Sunday, June 7, 2009
About Me
- Name: Dylan
- Location: Burlington, CT
Dylan was born with a genetic condition known as Alagille Syndrome. Alagille Syndrome affects those who have it in different ways, but it is mainly a disorder of the liver, kidney, heart and eyes. Dylan's biggest issues as a result of the syndrome are his liver and kidney. His liver and kidney issues make it difficult for him to absorb nutrients and grow, and Dylan suffers from intense itching as a result of his liver problems.
Previous Posts
- Dylan in the PICU
- Dylan's struggle
- Mother's Day
- Mount Sinai visit
- Friendly's fundraiser
- Pasta Dinner
- Double Listing
- Yale consult
- It's Official!
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1 Comments:
priceless photo
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