Dylan P.

Friday, June 19, 2009

Friday, June 19th

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It is with great sadness that we write today. This morning Dylan passed away in our arms at CCMC. While our hearts are broken, we are happ...
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Sunday, June 14, 2009

Dylan's condition

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Dylan remains sedated and intubated at CCMC. He has been in this state since June 5th, when he underwent a lung biopsy. It was determined th...
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Sunday, June 7, 2009

Dylan's disposition

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I just wanted to mention that in spite of all Dylan's health struggles, tests, poking and prodding and feeling just plain lousy most of ...

Dylan and Grandma Thursday, 6/4/09

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Dylan in the PICU

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Dylan has been at CCMC since May 28th and is now in the PICU (Pediatric Intensive Care Unit) at CCMC. Dylan underwent a lung biopsy on Frid...

Dylan's struggle

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On Thursday, May 28th we brought Dylan to CCMC's Emergency Room to try to get him healthy enough to receive his transplant. He has been...
Monday, May 11, 2009

Mother's Day

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We received a call today from Yale that a liver had become available and that Dr. Emre had accepted the offer. We were told that the donor ...
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Dylan
Dylan was born with a genetic condition known as Alagille Syndrome. Alagille Syndrome affects those who have it in different ways, but it is mainly a disorder of the liver, kidney, heart and eyes. Dylan's biggest issues as a result of the syndrome are his liver and kidney. His liver and kidney issues make it difficult for him to absorb nutrients and grow, and Dylan suffers from intense itching as a result of his liver problems.
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