We went to Boston Children's today to meet the transplant nurse and drop off some of Dylan's medical records. Jillian said we will have to come back with Dylan for a two-three day transplant consult soon.
posted by Dylan @ 10:00 PM
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Dylan was born with a genetic condition known as Alagille Syndrome. Alagille Syndrome affects those who have it in different ways, but it is mainly a disorder of the liver, kidney, heart and eyes. Dylan's biggest issues as a result of the syndrome are his liver and kidney. His liver and kidney issues make it difficult for him to absorb nutrients and grow, and Dylan suffers from intense itching as a result of his liver problems.
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